Another Round of doctors...another round of prayers answered but questions unanswered...

Okay, I went and saw a BUNCH of docs lately (and still have a few more to go see)...but the important news is this--my lungs are completely CLEAR. WOO HOO!! No more nodules. Doing a happy dance. My lung doc informed me that the "stuff--i.e. nodules were quite large--and also were numerous. He wasn't very happy to find out that my rheumie was asking me if I would again consider going back on the Enbrel (which my lung doctor believes was the main culprit in lowering my immune system to the crazy level where I got some really weirdo lung infection that basically took over my lungs--kind of like tuberculosis) My rheumatologist, though, (and I can see her side of the picture as well--says how well it helped with my headaches and diarrhea (oops--TMI, I am sorry--but the second ailment was so severe that I literally was homebound because of it. When I was taking Enbrel, it was the first time in almost 25 years that I could really have a somewhat "normal" life--except for ONE thing--my lungs became all gunked up within 2-4 months. So, of course, I just have to deal with the headaches and tummy trouble because I can't go back on that med which crashes my immune system (I am also on 3 other immunosuppresent "chemo" meds and then steroids which don't help matters any.

SIGH!! And STILL, with all of these meds...I have such awful headaches.

As I said...I still have another round of docs to go to--and one of those happen to be the neurologist. So, we shall see what he recommends. He is just THRILLED that I am still alive. Apparently, according to my MRI films, I have a "big hole" in my brain and I should be just grateful to be functioning as well as I am. He is always just amazed at how well I get around (as if I should just be sitting there drooling in the corner or something?? I am not sure what he really expects?? However, I am extremely stubborn--so if anything, they (docs) should all expect me to give them one HECK of a time. LOL!!

Anyway...that's the update for now. Again....thank you SO much for all of your prayers. The power of prayer is JUST amazing--isn't it?? Do you have a story about how the power of prayer in your life?? Do you have any tips for trying to deal with "dueling docs"?

Again--take care and SMILE at a stranger :)

Gentle hugs

Feb 2003 Fish Stick Fridays

Lent is just around the corner. What are your memories of Lent? Growing up and attending Catholic School (especially after Vatican II), I didn't really fully appreciate the meaning of Lent or the wonderful traditions that can be celebrated throughout the season. For instance, when I was growing up, the big question was "What are you giving up for Lent??" Sort of like a delayed New Year's resolution or something. As kids, we normally would give up gum or treats (some kids had bigger goals but the kids I knew stuck with the "old" routine) Of course, we had Fish on Friday. Yum...FISH STICKS! Always Fish sticks...unless it was payday for my dad and then we might get Filet O Fish from McD's. (And soon the no treats resolution for Lent gave way to the complete rationalization/justification (ha ha) that a Shamrock Shake from McD's is NOT a treat but rather a wholesome milk product. Yeah right!Now though I think of Lent not so much as something that I have to give up...but more of what do I have to give?? What is harder...giving up that piece of cheesecake OR actually doing performing an act of kindness and goodness....JUST BECAUSE (and doing it in the name of the Lord for Lent....of course, that part should just remain between one performing the good deed and the Lord because the one thing God doesn't like is someone tooting his/her own horn.Also, the past few years, I have REALLY thought about the Lord's Passion and especially the time he spent on the cross. I ached with him when Peter denied him, I cried when I thought of the disciples falling asleep..(he just asked for ONE hour!!!) Think of that...just ONE hour God asks of us....how many of us give him that ONE hour a week by going to church and hearing the word of the Lord?I hope that someone reading this will find it his/her heart to return to church this Lenten season and to be there on Easter to celebrate the Risen Lord!Lastly, I suppose I should give a health update. First of all, thanks to all of you for your prayers. The power of prayer is just AWESOME!! I had a worrisome Chest xray back in October and had to wait for three months to get another one to see if I was going to need further treatment. When I had the xray, the spot was gone! So, that is wonderful news. I still have to have oxygen though as my lungs are scarred and I have pulmonary hypertension from the lupus and myastenia gravis.I am getting around really good with my new hip...now I have a "matched" set. I haven't set off any detectors yet. LOL! I am no longer in the wheelchair, no longer using the walker, and use the cane for short distances out in public. I still need the wheelchair for longer times out in public due to the oxygen problem but still this is a pretty major deal for me.Tom thanks all of your for prayers that you have said for him. It is so hard to be a caretaker for a loved one. I have so much respect for those of you out there who are taking care of a family member. Please say a special prayer for all caretakers out there!!